{"id":552,"date":"2022-07-15T17:00:28","date_gmt":"2022-07-15T17:00:28","guid":{"rendered":"https:\/\/sites.bc.edu\/devtech2\/?page_id=552"},"modified":"2023-10-04T20:35:30","modified_gmt":"2023-10-04T20:35:30","slug":"zora-at-hospitals","status":"publish","type":"page","link":"https:\/\/sites.bc.edu\/devtech\/beit-midrash\/zora\/zora-at-hospitals\/","title":{"rendered":"Zora at Hospitals"},"content":{"rendered":"<p><b>About the Project<\/b><\/p>\n<p><span style=\"font-weight: 400\">The Virtual Communities of Learning and Care project (VCLC), directed by <\/span><a href=\"https:\/\/www.marinabers.com\/\"><span style=\"font-weight: 400\">Professor Marina Umaschi Bers,<\/span><\/a><span style=\"font-weight: 400\"> provides a unique experience for youth in transplant programs at <\/span><a href=\"http:\/\/www.childrenshospital.org\/\"><span style=\"font-weight: 400\">Children&#8217;s Hospital Boston<\/span><\/a><span style=\"font-weight: 400\"> and <\/span><a href=\"https:\/\/www.floatinghospital.org\/\"><span style=\"font-weight: 400\">Tufts Floating Hospital for Children<\/span><\/a><span style=\"font-weight: 400\">. VCLC engages pediatric patients in participating in a virtual community where they can design a city, write stories, create characters, chat with each other, and participate in an online support group by using the Zora multi-user graphical environment. VCLC is a research project sponsored by career grant #IIS-0447166 by the <\/span><a href=\"https:\/\/www.nsf.gov\/\"><span style=\"font-weight: 400\">National Science Foundation<\/span><\/a><span style=\"font-weight: 400\"> and <\/span><a href=\"https:\/\/hria.org\/tmf\/noonan\/\"><span style=\"font-weight: 400\">Deborah Munroe Noonan Memorial Fund <\/span><\/a><span style=\"font-weight: 400\">in collaboration with the <\/span><span style=\"font-weight: 400\">Dept. of Psychiatry at Children&#8217;s Hospital Boston<\/span><span style=\"font-weight: 400\"> and the <\/span><a href=\"https:\/\/www.floatinghospital.org\/\"><span style=\"font-weight: 400\">Tufts Floating Hospital for Children<\/span><\/a><span style=\"font-weight: 400\">. The goal is to explore the potential of virtual technologies to improve the quality of life for transplant youth and for other children and adolescents in need.<\/span><\/p>\n<p><a href=\"https:\/\/sites.bc.edu\/devtech\/research\/past-projects\/zora\/zora-hospitals\/zoracollage\/\" rel=\"attachment wp-att-773\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-773 aligncenter\" src=\"https:\/\/sites.bc.edu\/devtech\/files\/2018\/04\/zoracollage.jpg\" alt=\"\" width=\"472\" height=\"359\" srcset=\"https:\/\/sites.bc.edu\/devtech\/wp-content\/uploads\/sites\/181\/2018\/04\/zoracollage.jpg 700w, https:\/\/sites.bc.edu\/devtech\/wp-content\/uploads\/sites\/181\/2018\/04\/zoracollage-300x228.jpg 300w\" sizes=\"auto, (max-width: 472px) 100vw, 472px\" \/><\/a><\/p>\n<p><b>Research<\/b><\/p>\n<p><span style=\"font-weight: 400\">This research examines the potential of virtual environments to foster positive youth development in adverse circumstances, such as having a severe chronic illness or dysfunction that requires organ transplant. This project, funded by the <\/span><a href=\"https:\/\/www.nsf.gov\/\"><span style=\"font-weight: 400\">National Science Foundation<\/span><\/a><span style=\"font-weight: 400\"> (NSF) and the <\/span><a href=\"https:\/\/hria.org\/tmf\/noonan\/\"><span style=\"font-weight: 400\">Deborah Munroe Noonan Memorial Fund<\/span><\/a><span style=\"font-weight: 400\"> investigates how to develop technological environments, such as the Zora virtual world, to promote positive development in youth and encourage medical adherence and coping strategies among pediatric patients.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Since September 2006, in collaboration with the <\/span><span style=\"font-weight: 400\">Department of Psychiatry and the Transplant program at Children&#8217;s Hospital Boston<\/span><span style=\"font-weight: 400\">, we have been running an NSF research project in which solid-organ pediatric patients use the Zora virtual world. As of fall 2008, we began a new phase in the project with additional funding from the Deborah Munroe Noonan Memorial Fund and we have been working with the Transplant program at <\/span><a href=\"https:\/\/www.floatinghospital.org\/\"><span style=\"font-weight: 400\">Tufts Floating Hospital for Children<\/span><\/a><span style=\"font-weight: 400\">. Zora is a three-dimensional multi-user environment that engages youth in building a virtual city, chatting with each other, creating virtual places\/characters, and writing interactive stories. Patients connect with other children in similar medical situations from their homes or the hospital and share their experiences with each other. In the process of using Zora they explore strategies that might help them with medical adherence and coping. They also address other areas of concern for them, such as how to ease the transition to school.<\/span><\/p>\n<p><span style=\"font-weight: 400\">This NSF and Deborah Munroe Noonan Memorial Fund supported research project examines the extent to which we can leverage youths&#8217; interests in online technologies to create an intervention program to improve the overall well-being and health of pediatric transplant youth. For this research we have developed a specifically tailored psychoeducational program that we implement through engaging transplant youth to participate in Zora. <\/span><\/p>\n<p><span style=\"font-weight: 400\">The project goals are:<\/span><\/p>\n<ul>\n<li><span style=\"font-weight: 400\">To facilitate peer network building<\/span><\/li>\n<li>To encourage medical adherence in pediatric transplant patients<\/li>\n<li>To support their psychosocial development by assisting their adjustment to lifestyle changes, medical regimen, and school life.<\/li>\n<\/ul>\n<p><b>People:<\/b><\/p>\n<p><b>Primary Investigator<\/b><span style=\"font-weight: 400\"> &#8211; Professor Marina Umaschi Bers &#8211; <\/span><span style=\"font-weight: 400\">marina.bers@tufts.edu \/\/ <em>marina.bers@bc.edu as of 2022<\/em><\/span><\/p>\n<p><b>Project Coordinator &amp; Online Facilitator<\/b><span style=\"font-weight: 400\"> &#8211; Keiko Satoh &#8211; <\/span><span style=\"font-weight: 400\">keiko.satoh@tufts.edu<\/span><\/p>\n<p><b>Research Assistant<\/b><span style=\"font-weight: 400\"> &#8211; Kathryn Cantrell &#8211; <\/span><span style=\"font-weight: 400\">kathryn.cantrell@tufts.edu<\/span><\/p>\n<p><b>Research Assistant<\/b><span style=\"font-weight: 400\"> &#8211; Alisha Bouzaher &#8211; <\/span><span style=\"font-weight: 400\">alisha.bouzaher@tufts.edu<\/span><\/p>\n<p><b>Research Assistant<\/b><span style=\"font-weight: 400\"> &#8211; Amy Fischer &#8211; <\/span><span style=\"font-weight: 400\">amy.fischer@tufts.edu<\/span><\/p>\n<p><b>Technical Coordinator<\/b><span style=\"font-weight: 400\"> &#8211; Nauman Khan &#8211; <\/span><span style=\"font-weight: 400\">nauman.khan@tufts.edu<\/span><\/p>\n<p><b>Children\u2019s Hospital Boston<\/b><\/p>\n<p><b>Psychiatry<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Dr. David DeMaso<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Dr. Joseph Gonzalez-Heydrich<\/span><\/li>\n<\/ul>\n<p><b>Cardiac Transplant Program<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Elizabeth D. Blume, MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Leslie Smoot, MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">TP Singh, MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Chris Almond, MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Ann Rounseville, MSW, LICSW<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Jaimie Lyons , MSW, LICSW<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Heather Bastardi, RN, MSN, PNP<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Shay Dillis, BSN<\/span><\/li>\n<\/ul>\n<p><b>Kidney Transplant Program<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">William E. Harmon, MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Roberta Hoffman, MSW<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Theresa Pak, MPH, RN<\/span><\/li>\n<\/ul>\n<p><b>Liver Transplant Program<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Maureen M. Jonas, MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Robin Stone, LICSW<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Laura E. Krawczuk, CPNP, RN<\/span><\/li>\n<\/ul>\n<p><b>Tufts Floating Hospital for Children<\/b><\/p>\n<p><b>Pediatric Hematology\/Oncology Department<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Howard Grodman , MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Cynthia Kretschmar, MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Cathy Rosenfield, MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Ann Marie Conroy, MSN, PNP<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Cathy MacPherson, MSN, PNP<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Carol Farwell, Child Life Specialist<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Jeanne Hampton, Child Life Specialist<\/span><\/li>\n<\/ul>\n<p><b>Pediatric Renal Department<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Lawrence Milner, MD<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Jamie Owens, RN<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400\">With support from:<\/span><\/p>\n<p><span style=\"font-weight: 400\"><a href=\"https:\/\/www.nsf.gov\/\">NSF<\/a> &amp; <a href=\"https:\/\/hria.org\/tmf\/noonan\/\">Deborah Munroe Noonan Memorial Fund<\/a><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>About the Project The Virtual Communities of Learning and Care project (VCLC), directed by Professor Marina Umaschi Bers, provides a unique experience for youth in transplant programs at Children&#8217;s Hospital Boston and Tufts Floating Hospital for Children. VCLC engages pediatric<\/p>\n","protected":false},"author":140573,"featured_media":0,"parent":546,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","footnotes":""},"class_list":["post-552","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/sites.bc.edu\/devtech\/wp-json\/wp\/v2\/pages\/552","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sites.bc.edu\/devtech\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/sites.bc.edu\/devtech\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/sites.bc.edu\/devtech\/wp-json\/wp\/v2\/users\/140573"}],"replies":[{"embeddable":true,"href":"https:\/\/sites.bc.edu\/devtech\/wp-json\/wp\/v2\/comments?post=552"}],"version-history":[{"count":2,"href":"https:\/\/sites.bc.edu\/devtech\/wp-json\/wp\/v2\/pages\/552\/revisions"}],"predecessor-version":[{"id":9528,"href":"https:\/\/sites.bc.edu\/devtech\/wp-json\/wp\/v2\/pages\/552\/revisions\/9528"}],"up":[{"embeddable":true,"href":"https:\/\/sites.bc.edu\/devtech\/wp-json\/wp\/v2\/pages\/546"}],"wp:attachment":[{"href":"https:\/\/sites.bc.edu\/devtech\/wp-json\/wp\/v2\/media?parent=552"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}